I went to this event this past Sunday with Ian and Tiffany of the CRPS/RSD Foundation. It was chilly as anything, but it was worth the trek out to the middle of nowhere, also known as the Toronto Botanical Gardens.
The flowers were stunning, but the chill was just a bit too much for my bones, so I didn’t stop to take any pictures.
The event was small but successful with a wonderful snack table and the cutest awareness ribbons.
The speakers for this event kept the attention of the audience quite well.
Neill Shewan was an interesting emcee and Vice Chair of ActionCIND; he didn’t know how to pronounce Myalgic Encephalomyelitis. I hope that he will take some time in the future to learn to pronounce the diseases that he’s dedicating so much time and effort to.
The Tweed Main St. rep was fantastic about giving a short but intelligent talk on the benefits of CBD and how the legalities of it works. I really enjoyed her talk and I wish more time was allotted.
Doctor Ko was charismatic and informative. Although, some of his actual information was incorrect or outdated (according to my more informed friends), but it’s nice to see that fibromyalgia and similar diseases are being taken seriously. Anyone with these diseases will tell you that this isn’t always the case. His approach to medicine is to treat the underlying disease and not just the symptoms. Makes sense, right?
Courtney Mulqueen, the disability lawyer, gave me hope for people with these disabilities. I would seriously consider looking her up if you need help with an ODSP application.
The poster boards were really well done. The walls were plastered with informative and cute displays. (click the photo to enlarge)
Overall, I’d call the event a success. ActionCIND’s brochures are stunning, same as their website. (Although the giant money button is a little obnoxious)
Unfortunately, I couldn’t post about this event earlier because I was given only the most minimal details and even with all my google-fu, I could not find anything about this event.
They also managed to bypass all under-represented diseases that also share the same category of “Chronic Immunological and Neurological Diseases”. I understand that you can’t focus on every single disease, but a mention on the website doesn’t seem unreasonable if the organization is going to have Chronic Immunological and Neurological Diseases (CIND) in its name. Mind you, this point completely bypassed me until Tiffany brought it up.
Our mission is to advance the recognition, empathy, treatment and support services for Chronic Immunological and Neurological Diseases (CIND) by raising awareness, advancing research, developing education, establishing treatment centres, providing information and support services and collaborating with other organizations in Canada and internationally – ActionCIND link.
The front of the brochure says treatment centres, research, education, support services. I’ve only managed to find that the creator of ActionCIND “assisted with the creation of a Treatment Centre vision document in 2009 that has now led to the creation of Action CIND.” link. There’s no mention anywhere of actual treatment centres.
All-in-all, it was a great event.
I look forward to future events by ActionCIND and I hope that they gain many successes!